We grieve when we loose someone; a family member, a friend....we all grieve together....another loss can feel like grieving the loss of our husbands/loved ones all over again...did you know that even Jesus grieved, too? Jesus was heavy-hearted when he saw the people grieving and learned of the death of his friend, Lazarus. Why, the Jews even mocked him for doing such! John 11:33-37: "When Jesus saw her weeping, and the Jews who had come with her also weeping, he was deeply moved in his spirit and greatly troubled. And he said, “Where have you laid him?” They said to him, “Lord, come and see.” Jesus wept. So the Jews said, “See how he loved him!" But some of them said, “Could not he who opened the eyes of the blind man also have kept this man from dying?”"
We are reminded to not stay stuck in our grief. We have to press on, press through it. It seems like grief is an often visited place as we lose many of our precious ones, and again, it can take us to that place when we grieved our husband/loved ones. Grief is needed in order to begin the process of healing. Ecclesiasties 3:4-5 tell us that there us "A time to cry and a time to laugh. A time to grieve and a time to dance. A time to scatter stones and a time to gather stones. A time to embrace and a time to turn away." I love what John 16:22 says, "So with you: Now is your time of grief, but I will see you again and you will rejoice, and no one will take away your joy." We have the true hope to see our loved ones and dear friends again. They are waiting for us in the presence of our Lord. It is alright to grieve, but we grieve with Hope, and we have to remember to keep pressing on through our grief with our Lord and in prayer. Our God will see us through. We are all here to support one another, so please reach out when you feel the need. Do not stay alone in your grief in any stage, and remember, you are not alone.
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You're a survivor from a cancer, maybe two, even three time cancer survivor. That's great! Congratulations! You have passed those first few years of excessive worry, along with continued, continuous heavy monitoring, and oh, those pesky side effects from treatment. You've faced those recurrence fears, the intense scanxiety and you begun to find your new normal. You had so many questions and concerns that led to increased anxiety, stress and possibly depression. You've accomplished the healing, the starting of the healing, at least; the scars, health and mental from this life changing event.
Those first five years were by far the addition to the most stressful and traumatic time of your life. Those 5 years have drug on for what seemed like forever, while, at the same time, passed by relatively quickly for that time was consumed with so many news for this new life into your new normal and the beginning stages of healing. Some, during those fresh survivorship years, are heavily involved in other activities as part of their new normal, including being active in participation of health studies, research surveys, and other community outreaches. Many find this new normal also involves life changes that resulted from personal change, such as a job switch, going back to school to earn a degree or certification, possibly even moving into a new location, whether a gain or a loss of financials. Busy with all of the new normals, consumed with it daily, leading to one day-BOOM! You realize that you are no longer in that early stage. You look back to see that you are entering into long-term survivorship. How did this happen? How could this be? Where did the time go?! Year after year of counting the new anniversary dates as if they were added into others like birthdays....heck, you may have even found yourself celebrating each cancerversary and chemoversary. You have come this far! Amazing! Upon realizing you have entered into long-term survivorship, there grows an even deeper appreciation for life and that that particular number of years into your survivorship. Do not be fooled; however, because alongside your celebrating come those long-term side effects of cancer and any of its treatments received. I am almost a 9 year survivor-wow-9 years, A rare placental cancer called choriocarcinoma from a complete twin molar pregnancy is what gave me the name of 'cancer survivor'. My 9 year old daughter is the surviving twin from that molar pregnancy. It dawned on my very recently that I was no longer within those stages following survivorship when I received an email for a cancer research organization asking for cancer survivors to fill out a questionnaire survey. The catch-survivors had to be within 5 years or under to qualify for submission. What?! After years of doing this, that I longer could participate in some of these now and although I was a tad bit bummed to not be able to put my feedback and experience to use for the study, I was thrilled, though, to actually know that I was beyond that timeframe and into a new stage of survivorship! Pausing and reflecting my own cancer journey, there are times now, many, that realized that I no longer had that continual reminder that I am a cancer survivor. I actually forget and feel like a 'normal' person most of the time, that is, until something comes up, say a simple illness or a pain, or side effect issues, and um, well, labs. Having entered into the long-term survivorship process gives perks of being somewhat settled into your new normal, things that were felt with a stretch course of time. Having this can lead to a more relaxed life with continued maintenance of such side effects, knowing the dos and don'ts of managing those side effects. This is a more comfortable fact of management that allows more free time to live life outside of those cancer side effects. As I mentioned prior, the sidekick of this adjusted new normal are long-term side effects lingering, possibly even new ones that pop-up. This new acknowledgement takes you into a new shift of dealings and self- recognitions. There may be long-term side effects that have entered a step further into needing to access and retry that new normal. There may new side effects or health issues from that have to be discovered or dissected to be found. There are even possibilities of another cancer or a secondary cancer that creeps up for particular chemos given. Labs. Yes, those famously known lab draws. The one thing that I learned is that even after almost 9 years out, scanxiety is still readily there at annual labs. There is a small lingering amount of PTSD from the initial traumatic experience event, even to the least of remembering that very feeing of it to a 'T' which can lead to bringing up PTSD all over, maybe not a strong, but it is still there. There may be a possibility of more self-control to handle it, knock it down with time spanned between your healing and initial dealings of it. It reminded me of training for something, say a dance routine. With your continued practice and time put into it, you gain your experience to better control and deeply feeling that practice. For me, labs were such firsthand, receiving weekly chemo with every other week being inpatient for 3-4 days for 6.5 months, my blood was always being drawn and send off, waiting for the results in the oncology department to know if we could move forward or go backward. Once the chemo treatments were finished, I was still being sent to the lab for heavy monitoring: weekly to bi-monthly to monthly to every three months, down to every 6 months then annual for a few years. That sift was excessively hard and for another story! So what do we take away from all of this? Well, long-term survivorship has a fine balance between pros and cons, but for some, more pros than cons. Here is a list: Pros- 1. Maintenance of long term side effects 2. Short term side effects have diminished 3. Settled into new normal following cancer diagnosis and treatments 4. Time to heal physically, mentally, emotionally, sexually (especially for reproductive cancers) 5. Gained knowledge and experience leading to a new you, a new life such as a career change 6. Give others hope, even without knowing it Cons- 1.New side effects or health issues arise from cancer and/or treatments which lead to finding those new normals 2. Continuation of cancer/cancer treatment related health issues 3. Secondary cancers can arise from treatments 4. Not qualified to volunteer for some various cancer research/surveys 5. Lingering PTSD Embrace how far you've come. Celebrate how far you've come. You deserve to celebrate you survivorship and declare it to the world to give hope to others that are behind you in their cancer journey. Celebrate YOU! Celebrate LIFE! ◇ You lose at least half of yourself
◇ Grieving is pain, tears, anger, regrets, grief dreams, even heart pain (known as broken-hearted syndrome) ◇ You can love/be loved again ◇ You can have the pain of another loss again (big fear for most) ◇ You will always have the pain of your loss ◇ You will always love/miss your loss ◇ There is a mixture of pain and love together; imagine a rainstorm with a rainbow as you begin to heal, even find love again ◇ Your loss and new love will always have an overlap to a degree or more ◇ Loss pain does become more manageable with time ◇ Grief can be a mixture of all stages, even jumping from level to level, out of order ◇ The first 2 years are the hardest after a loss ◇ There is no limit in your time to grieve; as a matter of fact, once you've had a loss, there will always be grief to some degree, which leads to: ◇ We 'move forward', not 'move on' ◇ Our loss will always be a part of you/your children ◇ You have to heal first/refind yourself before finding love after loss ◇ Tears have to come in order to begin healing ◇ You will smile again Life after loss, reforming, regrowing stages.....I like to call this "New Beginnings". Imagine a new, fresh rosebud or what's inside a cocoon. We have to refind ourselves without our loved one, continuing on with everything anew all within our old selves.
This takes time and this time varies from person to person. This stage is not easy to get to but once it is reached, it can also be a bit overwhelming with its beautiful gratitude. As we progress forward, we NEVER forget where we've come from nor our loved one lost. All of this only helps reshape us into whom we become. It is alright to smile again, laugh again, be happy again all while being scared, unsure, cautioned. If you have reached this stage, I congratulate you; if you have not, I tell you to keep pressing forward through the frontline pain and the healing process-you will get there, my friend. Keep pressing into our Father and Lord. {Psalm 30:2} These two words have become common words said to me, almost a staple to being a cancer survivor. In the nearly 7.5 years of my survivorship, I have heard and been told these words on several occasions. My response? Well, quite frankly, in the very beginning, I had no words, just a smug of a smile, if you will, or a blank response face within the newly fallen tears. What is one to say in response? "Thank you,"? How do you thank someone under those circumstantial facts? Happy, sad, dreadful, or denial with shock? Am I even due to owe them a thank you, to be politically correct? Let me not even mention the fact of dealing with survivor's guilt. After a few cycles of this conversation with varied people, I found myself responding like this: I had no other option than to be strong, to be strong for my kids. I have four; the youngest was only four months old at that time! My second youngest child was still a tender age of 5 years! Honestly, what else was I supposed to do?! Is there anything else to do? Entering past the half-way point in my chemo treatments (a 5 chemo cocktail that entailed two weeks' worth of chemo-three separate chemos at every inpatient-followed by outpatient which included the last two chemos. These two visits flip-flopped every other week, thus leaving me with weekly chemo), I actually could not continue on. I wanted to give up, quit. I actually wanted to quit. The regimen was too much for my body, both physically and mentally. I have to say it was also too much emotionally...a young mom with young kids.....I spent most of my time in bed, in bed sleeping, sleeping away the pain, the nausea, the meds, the everything. Being in bed was also less of a chance of me falling. When I was not in bed, I would slowly and ever so carefully walk down the halls into the family room where I would rest in my brown recliner, watching life continue on with my family as mine stopped. Upon my concern to not be able to continue on, my NP Oncologist said that I could do this and to remember that we had to hit this hard since it was a hard and quick cancer. A hit with a stronger hit as he used his fists to describe the force of action we had to continue on with since we were closer to the light, where the light will be the end. It didn't take much to persuade me but having his encouragement and medical support meant everything to me. This man truly cared. He wanted to see me succeed this battle. I am beyond grateful that I did continue on. When someone tells me how strong I am-I still tend to get a bit speechless and don't know what to say, BUT now being this far out and deep into the cancer world, I've known and seen two things: 1. God knows each of our time, and no matter how strong someone is/was, when God calls them; there is no strength that can overcome that. (Job 14:5) Our God is always in control. 2. I have seen inner strength at different levels; those that simply could not fight on, even for their kids, family, etc, which likely goes back to #1. So....I am thankful that I was and am 'strong' BUT only with our God's strength and glory to Him. Those other 'strong' survivors and warriors, I honor and admire. Going through cancer is NOT EASY in any way, so in my opinion, they-YOU-are all superheroes. My dear oncologist nurse always said we were her 'rockstars'. Indeed you are, they are, whether still here with us or not. Based on this, what do I say now when I hear, "You're strong,"? Simple. It was God's strength given to me (for His plan and purpose). By no means could I have made that entire journey without His strength, not even a sliver fraction of it. (Isaiah 40:29; John 15:5) It took me some time to get this right after the long whirlwind, and longer to express this to others. When I did, it was then that I realized this was the way in which it was giving Him glory, which led me to understand it's encouragement to others. A ministry in itself, as my late husband used to tell me. I completely understand now. As each of us cancer survivors are forever grateful to have another day alive, we continue honor those that have been lost to cancer. We continue to support those still fighting, those newly diagnosed, and those that fall into a relapse. Know that you are never alone, not even for a fraction of a second. We are all here and most importantly, our Father is here and there. (Joshua 1:9) Be strong and be brave. You are a warrior. Love to you all. It's no wonder that I came upon writing a book. Writing came to me at an early age, captivating my mind and hand. Creative writing was my go-to, my art, my creativity. Writing was supposed to be for fun, entertainment, and down-time for myself, that is until my world entered into the cancer world. Once inside with my life on the other side, blogging became my writing, researching, encouraging not only myself but others. My once creative writing became vital sources for others, even myself, cementing behind me a path that I actually lived out. The remarkableness of the entire thing?! As unplanned as it all was, the one thing planned was the interactiveness of it. In my obedience, I told God that if this was what He wanted, then I asked for it to be different that an ordinary paragraph-to-paragraph, word-for-word autobiography (boring to some, besides, who was I to strike the public interest, anyway?). That is just exactly what happened. God heard and He delivered. My book, Widowed After Cancer and Financial Loss: How One Woman Overcame Her Losses is an interactive study autobiography, filled with scriptures, questions, and journals to engage the reader, draw them in, and possibly que in on areas within their lives. This is exactly what I wanted! Personal pictures I added in, realizing why I had taken these to begin with-what was supposed to be my own personal documented journey had become available to the public within my book. It all made sense. It was all in completion of my entire journey. Now to the remarkable unplanned portions of this book journey facts?! There are seven chapters, it took 7.5. months to write, edit and publish, being pre-released to family and friends on my 7 year cancerversary in May AND being published-get this-on my late husband's date of death in June. This is beyond what anyone could ever plan intentionally! There are many scenarios in-between that led up to those facts, those scenarios that I had no control over. I actually wanted everything to happen on my 7year cancerversary, but having the publication on his day is the absolute perfect closure for me. It was over-emotionally. empowering. Through those emotions and tears, the kids and I found ways to rejoice, celebrate, and honor their dad and God together. It was a definite emotional ride but so graciously sure and true and just. Isn't our God just amazing?! To pick up your copy (or to simply check it out, even view a few pages) go to Barnes & Noble or Amazon, where an eBook is available thru Kindle. Here’s a shout out to gynecological cancer month, you know the ones like uterine, ovarian, cervix but what about the other ones, say, vulvar, or placental? What? Placenta cancer? Is that what you read? Placental cancer, yes. You read that right. Cancer of the placenta. Yes, the same special organ that forms during pregnancy. The same organ that feeds and nourishes the baby, that is, in a healthy and normal pregnancy. What? What is this? The technical name is choriocarcinoma, a type of gestational trophoblastic disease or GTD. How do I know this, you may be wondering? Why, I am a survivor of this rare type of gynecological
Cancer, chemo, radiation, steroids, surgeries, the whole speal of this journey can leave your body in a wreck, a train wreck; a wreck that can take time to recover, maybe never even fully recover. ‘New normal' is what us in the cancer world call this. Finding your new normal is but another segment to the cancer journey. This can be incredibly challenging, even intimidating for many. Post-chemo can leave cancer survivors left hanging alone, an untraveled road, one that can lead into post-traumatic stress (PTSD). Yes,
post-traumatic stress is real and an entire topic alone (outside soldiers’ stories). Post-cancer treatment is often left unaddressed leaving cancer patients to find this new normal alone through trial and error. This can be dangerous, bringing frustrations to the added learning to live out the new normal of everything all Two years to this day, I was on my way to my first photoshoot as a widow. I remember being in a cloud aka ‘widows’ fog but not to the full extend of where I had no control or not remembering. It had been only slightly over two months since I had lost my husband of 21 years suddenly and unexpectedly to a catastrophic brain stem hemorrhage stroke. He was 51 years old. I had to continue to do what I was doing without him. This advocacy awareness was definitely my calling and I was not going to reject this great invitation and experience. Am I glad that I didn’t now. I had about a 3 hour drive to the beach to the photoshoot site, a location that I’d never been to before. I was looking forward to the scenic drive and had hopes to take the kids to the beach following the shoot. As we all sit in our homes, isolated away from our normal day-to-day activities and peeps, to the cancer world, this is nothing new or unexpected. Us cancer survivors and patients know first-hand about homebound isolation and staying away from people. We know about having to leave our day to day activities to allow for treatments, appointments, tests, resting, healing or just doing nothing but breathe. We know what it is like to have our entire life come to a halting stop. We know what it’s like to be sitting within our walls, watching from the inside. We know the ideas of confinement and withdrawals. We know the long-lived anticipation to return to normal, oh, yes, normal, a normal that many never get back to….we know all too well. We know what it’s like wearing masks all while eyeing people from afar. We know all too well the varied That is a question, a question for many facing chemotherapy or currently on chemotherapy. A question for some of us post-chemo or those who have been left with more permanent side effects. You’re left with the decision of changing your look in order to look similar to how you did before treatment or styling differently according to your new situation. Whatever your reason to question, it is always smart to learn the pros and cons. You should never feel pressured to do one thing or the other. During my long, hard
You only have 2 choices, and choosing the wrong one could be devastating. These two choices can be life-changing, life-altering.
“What are these two choices?” you may ask. As you’re sitting in the doctor’s waiting room, these two choices wander around in your head. The first choice is to go into the doctor’s office blindly, relying solely on your symptoms and blindly following the path that your doctor gives to you. The other choice is to go into the doctor's office with some insight, direction, and knowledge so that you can be your own advocate. How do you be your own advocate? Self-advocacy is looking out for yourself and respectfully standing up for your views, opinions, How and when do you tell someone new about your cancer history? Yea. This topic has taken me to many uncomfortable zones, levels beyond my normal. This changed once I put myself in many of those uncomfortable zones.
It all started with a lack of information upon my diagnosis. This led me to social media. I was looking for It's World Cancer Day. What does that mean? Is this a holiday only for cancer survivors and cancer patients? Are caregivers involved on this day? For those that are new to the cancer world and those "Outsiders" World Cancer Day can be another spuriest made-up holiday. But World Cancer Day is more than that when looked beyond a glance.
As a cancer survivor, I am learning of all the 'perks' that come with diagnosis and remission. I engolf myself with all available resources to my advantage and pass on to others, therefore my reason of writing this blog. World Cancer Day is a national holiday for cancer recognition, detection, prevention and treatment. This is Dear X- Friend,
Why do you avoid me? What is it that makes you fear? Is it my mask? My baldness? My paleness? Is it my cancer? Just say it. You are afraid of catching my cancer, my germs, my death sentence. Am I correct? Is this why you left me? Is this why you broke off our friendship, our relationship? Is this why you went running? You never looked back. You never cared enough to look over your shoulder. You never thought twice about leaving, abandoning me. You never cared enough to stay. Live in your denial. You never cared to ask. You never cared to hear my story. You never cared to learn the truth of my facts. You don't care if I All I heard over a 12 hour period was that I was pregnant and/or miscarrying across several floors--from the ER to Labor & Delivery to Telemetry--until they tried to send me home. The last remark I heard before an actual diagnosis was that I was having a heavy period. As I was hemorrhaging. We're talking two buckets full, nearly-passing-out, horror-movie stuff. This was not just a heavy period. Give me a break.
Repeatedly, I refused their explanations for my four-month-postpartum intermittent bleeding. Repeatedly, I refused to go home. I was NOT going to bleed to death in my bed. I knew something was wrong and that Social media. Some hate it, some love it. It is a love-hate relationship for many. But what if it could be used as a tool? A tool to sharpen the knowledge of others, a tool to erase the ignorance, a tool to engage needed support? A tool is a tool indeed. Prior to my cancer diagnosis, I avoided social media with mixed feelings, only drawing out the negativity from it. As much as I wanted to open an account, I dismissed the idea several times. Upon my cancer diagnosis, I quickly found myself on Facebook connecting with family and friends, posting weekly updates of my cancer journey. It was much easier than trying to keep up with handwritten l I remember the day clearly. My head was still rapidly spinning. I had finished weekly chemotherapy after six and a half months and my picc-line (peripherally inserted central catheter) was about to be removed. The reality was, I was terrified of this change. A number of what-if's filled my mind and uncertainties quarantined my body. So soon? I wasn't ready for this, yet it was an oncology order. I had learned to adjust to this being in my arm; it had been part of my arm as I learned to deal with the pain and minimal use that seeing it off was too much to grasp. I needed a little more time! The thought of my cancer returning and having another one put in was horrid. The picc-line RN that put it It's hard enough to express you've had cancer, but explaining a rare cancer is even more difficult.
Most patients automatically expect to hear breast cancer, colon cancer or bone cancer. When I say choriocarcinoma they ask, "What's that?" When they hear placental cancer their faces drop, almost in dismay, disbelief. Some even change the subject. Besides, it's a rare cancer, right? The chances of getting Bald is powerful. Bald is beautiful. Bald is bold. Bald is stylish. Bald is bald.
You may or may not agree with these. You may have had a change of heart as to how you see bald after your treatments. Maybe you don't. How do you see bald? For me, I saw bald very quickly. I had thinning hair on my first single agent treatment plan, but once I was Some are willing to talk about anxiety while others are not, remaining hidden beneath their fears and the torture of it. When my molar pregnancy disease progressed to aggressive malignant cancer choriocarcinoma, my anxiety was at its highest. A molar pregnancy is rare, and threatens the life of a child. In my case, this affected the twins I was expecting and in turn led to me getting cancer.
What is anxiety? Plainly put, it is stress, but it goes much deeper for many people; it can be internal fear, affecting everyday life, minute to minute, hour to hour. Typical signs are irregular heart palpitations, When you hear the word chemo, what are the first side effects that come to mind? The most commonly known ones are hair loss and nausea with vomiting. But are these all of the side effects of chemotherapy? Not at all! Anyone that has personally gone through it, along with the caregivers, know first-hand the nastiness and depth of chemo side effects.
I learned these firsthand when I was on an five agent cocktail for placental cancer choriocarcinoma from my complete twin molar pregnancy. Depending on the type of chemo, the length and the strength, some may vary from person to person, but below I’ve written out a list of some of It's not everyday you get to stay in the hospital, and most hospitals are far from luxurious. However everyone at some point in their lifetime spends at least one visit in the hospital, whether it be surgery, illness, or cancer treatment. Let's face it-hospital time is boring. Time seems to move very slowly. What are some tips to help the time pass?
I have done my share of time in the hospital after being diagnosed with placental cancer, choriocarcinoma, Most women get a baby after pregnancy. My pregnancy, however, gave me a baby and cancer. Actually, what began as two babies and cancer. That's right- I got Choriocarcinoma, or cancer of the placenta, as a result from my pregnancy. Who knew such a beautiful milestone could turn into something life-threatening? A Molar pregnancy happens when the tissue that normally becomes a fetus turns into an abnormal growth inside the uterus instead. What I experienced, my twin Molar pregnancy, resulted in the
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